It is known that there is a significant variation in how individual children and young people adapt to living with visual impairment and how they view their quality of life, regardless of the level of their visual impairment. 

Jugnoo Rahi, Professor of Ophthalmic Epidemiology and Honorary Consultant Ophthalmologist at UCL GOS Institue of Child Health and colleagues,  are trying to identify the factors that shape these differences and whether these factors or events could be addressed through family-orientated interventions designed and delivered to improve quality of life.

One of the specific interests is whether they, as the clinical teams, can do anything differently particularly around the time of diagnosis, even if it is just better signposting to resources and services.

The study team at UCL GOS are currently recruiting participants (current and prior patients) through the NHS and also from the general public and they are really keen to hear from a wide variety of children and young people and their families. If this sounds like something of interest and you would like to hear more, please let the team know by calling: 020 7905 2241, or email: This email address is being protected from spambots. You need JavaScript enabled to view it..

The study has all necessary HRA and Ethics approvals in place.